The Power of Finding Your Thyroid Tribe

Hey there,

I wanted to share something deeply personal with you today.

When I was really, really ill with hypothyroidism and thyroid cancer, I found myself in a truly dark place.

Both mentally and physically, I was struggling in ways that felt impossible to describe.

I remember asking my MacMillan nurse about support groups. There were groups for all kinds of conditions—cancer support circles, chronic illness meetups—but when I asked about one specifically for thyroid cancer or general thyroid issues? Nothing.

In that moment, I felt incredibly alone.

Then something happened that changed everything.

I was out shopping one day, still healing after my thyroidectmy with a massive scar across my neck.

A stranger approached me and simply asked, "Have you had your thyroid removed? I recognize the scar."

He went on to tell me he'd been through the same experience. He shared his number and said, "I know how lonely this is. If you ever want to talk to someone who gets it, I'm here."

He wasn't being weird. He was being human.

And it was exactly what I needed.

Suddenly, I didn't feel so alone anymore. ​
That connection was profound—knowing someone else had walked the path I was on and survived.

We became good friends and are in touch even today.
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Why Community Matters When You Have Thyroid Issues

This experience taught me something crucial: the power of community is transformative when you're managing a thyroid condition.

When you have others who have your back:

• You gain the confidence to advocate for yourself with doctors
• You find the courage to ask for that test they're reluctant to order
• You develop the persistence to push for that endocrinologist referral
• You access the wisdom of a collective experience—the "hive mind" of people who truly understand

For those of us with hypothyroidism or Hashimoto's, this kind of support often doesn't exist naturally.

We're left navigating a complex condition that impacts every aspect of our lives, frequently without proper understanding from the medical community.

Even our families often struggle to understand exactly what we are dealing with and give us the support we crave.

What You Can Do Today

1. Reach out if you know someone with thyroid issues. A simple "How are you really doing?" text can open important conversations.
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2. Join an online community if you haven't already. Even lurking and reading others' experiences can reduce that feeling of isolation.
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   ​You can join our free private facebook group here…​
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3. Share your story when it feels right. Your experience might be exactly what someone else needs to hear to keep them going...
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4. Keep notes on your symptoms, treatments, and questions. The collective wisdom of your community can help you make sense of your personal patterns.

Something Exciting is Coming...

I've been thinking a lot about how we can change this isolation so many of us feel. I've got some exciting ideas brewing about how we might build something that helps us all feel more empowered, more in control, and more confident about the treatment we deserve.

I'm working on something that I'll be revealing soon—a way for us to create the thyroid community I wish had existed when I needed it most.

Because here's what I've learned: When we stand together, we're stronger. When we share our experiences, we're wiser. And when we support each other, healing becomes possible in ways we never imagined alone.

Stay tuned for some exciting developments coming your way soon.

Until next time, be gentle with yourself.

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P.S. Did you have a moment when you realized you weren't alone with your thyroid condition? I'd love to hear your story if you feel like sharing.

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Join our private and supportive Facebook group: ​ The Hypothyroid & Hashimoto's Thrivers Recovery Community. ​ Connect with women who truly understand your journey. ​ 💜 JOIN US HERE 💜​ ​

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PLEASE NOTE - I am NOT a Doctor or Medical Professional of any kind.​
The content on this website is strictly for informational and educational purposes only. It is not intended to provide medical advice or to take the place of medical advice or treatment from a personal physician.
All recipients of this content are advised to consult their doctors or qualified health professionals regarding specific health questions​
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